Fibro Hell
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Sleep and fibromyalgia

28-10-2021
2 min read
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Daily Hell , Sleep
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I’m no stranger to sleepless nights. I suffer from IBS and, on a bad flare, I would go one or two nights without sleeping. This went on and off for a few years until I could finally control this syndrome and get back to my average 9 hours of sleep.

For a few years after getting the IBS under control, I had no trouble sleeping, even when I got the flu. And then came fibromyalgia.

Ever since the pain started, my sleep hygiene has suffered immensely. During the first weeks, I would have around two nights a week without sleeping and poor sleep for the rest of the days. As the pain increased, so did the number of sleepless days.

This got worst as time went by. For several months, I wouldn’t be able to sleep for at least four days a week. The sleep deprivation depleted my energy even more than fibromyalgia did, and no medication doctors prescribed would help. I was going insane!

Eventually, someone referred me to an excellent rheumatologist with an impressive resumé. He increased the dosage of the medications and prescribed more meds to help me sleep. After a bit of trial and error, I started taking Amitriptyline Hydrochloride pills, and my sleep mostly got on track.

Sometimes, my pain increases so much that even the Amitriptyline Hydrochloride pills don’t help me sleep during the night. But as the pain level decreases, I’m eventually able to rest - usually around sunrise.

These pills, opioids, antidepressants, and muscle relaxants barely have an impact on my pain level. At least, though, I can sleep most of the nights. But if I stop taking them, I can barely move with so much fucking pain.

image from Unsplash

#sleep
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Bruno Suffering from fibromyalgia since July 2020
Previous HaVe YoU tRiEd (insert random stuff)?

Series of Posts

Third anniversary of my living hell
Animal companionship in the context of chronic pain - my personal experience
Driven to desperation
I feel defeated
The holidays
How a cat made me feel excited again
I'm terrified about my future
Vacations and the toll on the body
Types of pain
Cannabis and pain
Covid, Fibromyalgia, and an increase in fatigue
A walk in the park
Fifth appointment - quick notes
Fourth appointment
Finding purpose
I had a chronic pain appointment that made me feel even more pain
Messed up sleep continues
Medical board to me: fuck you very much
High level, non-stopping
How it felt after the third appointment
Tracking the therapy progress
Third appointment done
Better on the surface
Multiple regions of my body with maximum pain intensity at the same time
Farto desta merda
To coma or not to coma
Things have gone downhill again
The pain relief didn't last long
Still feeling the treatment effects
Second transcranial magnetic stimulation appointment
Starting 2022 worst than I ended 2021
Looking back to 2021
No pain, no what!?
The Hellidays were like a beaten to my body
My arms hurt as much as my back
Maybe it's all bad luck
The third day after the first therapy session
I had my first transcranial neurostimulation appointment
Another very, very bad day
Things I do to "distract" myself from the pain
Transcranial magnetic stimulation medical appointment scheduled
How I keep an increase of pain at bay on family days
A Christmas pain song
O Christmas tree, O Christmas tree, how painful are your cold days
Another sleepless night
Round and round it goes
Things you should not say to someone with chronic pain
Worst pain level so far
Presented myself before a medical board and left the facilities feeling like shit
Building a good support network is essential
My experience with Social Security's medical boards
How I started cooking after fibromyalgia
I wake up feeling like I ran a marathon
A week of waking up around 8h like a fucking clock
WhY aRe YoU iN pAiN iF yOuR eXaMs ShOw NoThInG wRoNg?
Another sleepless night
I hate cold weather
HaVe YoU tRiEd (insert random stuff)?
Sleep and fibromyalgia
Messed up sleep continues
Another sleepless night
A week of waking up around 8h like a fucking clock
Another sleepless night
Sleep and fibromyalgia

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