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Driven to desperation

18-04-2023
2 min read
living with chronic pain
Daily Hell

A couple of months ago, more or less (I don’t remember the exact date), I was forced by Social Security to request disability. I had previously talked with a fibromyalgia association, and they told me they do this to stop paying the sick leave, which can legally last up to three years in Portugal. Forced, I requested it, but it was denied. The reasoning is that this is a cyclical syndrome. I should have periods with no pain, despite being known this doesn’t happen in some cases or, at best, the pain periods are very long, and the low or no pain periods are very short.

Armed with all my medical reports and information, I told them I only experienced high or even higher pain periods. If I had been quiet, the effect would be the same: they don’t give a fuck. In fact, it seems they have some bias against this type of syndrome. I’ve had my fair share of aggressive talk from them and heard a lot of nonsense coming from their mouths.

Since my disability was denied, they stopped paying me sick leave, not for medical reasons whatsoever, but because the disability was rejected. I’m on my second consecutive year of sick leave because I can’t work at my current job. Finding one where I can do something and accommodate my limitations has been challenging. I might have better luck creating literal magic than being able to find a job where I can actually do something, despite my limitations.

Now, I have zero income. Zero! I’m already cutting on food and medication. The medication part is making things worse for me because I also have IBS and asthma, but I don’t have any other option. I have to work with what I have, which right now is nothing. Luckily, the wife works but doesn’t have a fixed income, and we have expenses that need to be paid.

I’m reaching a level of desperation that… Things will become even worse for me at all levels.

#living with chronic pain #disability #sick leave #social security
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Bruno Suffering from fibromyalgia since July 2020
Previous I'm so sick of the bullshit around fibromyalgia
Next I feel defeated

Series of Posts

Third anniversary of my living hell
Animal companionship in the context of chronic pain - my personal experience
Driven to desperation
I feel defeated
The holidays
How a cat made me feel excited again
I'm terrified about my future
Vacations and the toll on the body
Types of pain
Cannabis and pain
Covid, Fibromyalgia, and an increase in fatigue
A walk in the park
Fifth appointment - quick notes
Fourth appointment
Finding purpose
I had a chronic pain appointment that made me feel even more pain
Messed up sleep continues
Medical board to me: fuck you very much
High level, non-stopping
How it felt after the third appointment
Tracking the therapy progress
Third appointment done
Better on the surface
Multiple regions of my body with maximum pain intensity at the same time
Farto desta merda
To coma or not to coma
Things have gone downhill again
The pain relief didn't last long
Still feeling the treatment effects
Second transcranial magnetic stimulation appointment
Starting 2022 worst than I ended 2021
Looking back to 2021
No pain, no what!?
The Hellidays were like a beaten to my body
My arms hurt as much as my back
Maybe it's all bad luck
The third day after the first therapy session
I had my first transcranial neurostimulation appointment
Another very, very bad day
Things I do to "distract" myself from the pain
Transcranial magnetic stimulation medical appointment scheduled
How I keep an increase of pain at bay on family days
A Christmas pain song
O Christmas tree, O Christmas tree, how painful are your cold days
Another sleepless night
Round and round it goes
Things you should not say to someone with chronic pain
Worst pain level so far
Presented myself before a medical board and left the facilities feeling like shit
Building a good support network is essential
My experience with Social Security's medical boards
How I started cooking after fibromyalgia
I wake up feeling like I ran a marathon
A week of waking up around 8h like a fucking clock
WhY aRe YoU iN pAiN iF yOuR eXaMs ShOw NoThInG wRoNg?
Another sleepless night
I hate cold weather
HaVe YoU tRiEd (insert random stuff)?
Sleep and fibromyalgia

See Also

I feel defeated
Medical board to me: fuck you very much
The holidays
How a cat made me feel excited again
I'm terrified about my future
Vacations and the toll on the body

License: CC-BY-SA-4.0 · Author: Bruno · Logo
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